Patient Stories

At Horizon, we believe we’re all patients…

Most of us has experienced illness in some way or another, whether through a family member, close friend or even ourselves. And from those experiences, we know that patients provide the most important perspective. They’re the ones who can tell us what it’s like to live with a rare, isolating disease or a highly stigmatized condition that causes daily, life-altering pain.

Ultimately, their voices direct what we do as a company, from how we bring our medicines forward to the services we provide and the resources we support.

Bringing patient voices out into the open also helps other patients, as well as their caregivers realize they aren’t in this alone. There is an entire community there to support them with strength, comfort, understanding and resources.

Visit the sections below to explore some of the work we are doing to help elevate patient voices.

 

CGD™ Connections

We’ve recently launched CGD Connections to establish a community resource for people with chronic granulomatous disease (CGD), a rare disease affecting about 1 in every 200,000 people in the United States. Through a dedicated Facebook page, CGD Connections offers practical advice and helpful information about living with and managing CGD, as well as a place to share with others living with CGD.

Visit the CGD Connections Facebook page.

Know Cystinosis™

Know Cystinosis is a website dedicated to helping people with this rare, genetic metabolic condition through education about the disease as well as tips for living with cystinosis. Tips and practical advice include guides for talking with children, planning for school and college, and more.

Visit KnowCystinosis.com.